August Road Trip, Heading West

30 Aug

Like our drive to Minneapolis, our journey to the Black Hills of South Dakota was around nine hours.  Susie alternated between the front seat and the back bed I assembled in the rear of our wagon.  As we left Minnesota, … Read More »

August Road Trip, Heading North

29 Aug

With Susie having a good neuro-oncology appointment, we set out on a two week road trip heading up to Minneapolis and over to the Black Hills of South Dakota, estimated at 3,500 miles.  Our first leg was a short drive to Dallas, … Read More »

Time for a Summer Vacation

17 Aug

Susie and I returned from her Neuro-Oncologist appointment today.  It has been quite a whirlwind last four months.  After three months of Hyperbaric Oxygen Treatment, Susie had a brainstem stroke in April.  She met with many doctors and has completed around three … Read More »

Disability Hearing

25 Jul

Susie and I had an Administrative Law Judge Hearing on the 19th of July.  She applied back in 2008 for Social Security Disability.  After chasing her claim for three years, we learned in 2011 that her claim was denied.  The … Read More »

June Graduation

6 Jun

It certainly feels like summer in Austin.  We’ve had a handful of days in the high 90s with spotty rain that has cooled days down into the 80s.  I think nights with 60 degree temperatures are gone for a few … Read More »

A Happy Mother’s Day

14 May

We’ve made it to the middle of May, which is no small feat considering Susie had a brain stem stroke two weeks ago.  This last week was a few steps forward.  Susie’s brother Doug was in town to help.  We … Read More »

My Experience w/ a Twitter Troll

19 Apr

Recently, I experienced a twitter shaming attack from an account whose description is “PROUD MUSLIM. LIVERPOOL! BOXING! @LFC #FreePalestine #FreeSyria #Humanity”.  His tweet was “@IBM this guy that represents you likes people starving to death, and thinks PALESTINE are terrorists“. … Read More »

The Season of Rebirth

2 Apr

Susie has completed four of eight weeks of Hyperbaric Oxygen Therapy (HBOT).  Middle of last week was quite hard for her.  She did not want to continue.  The treatment is not painful, but she feels very different after it.  The … Read More »

Two weeks into HBO Therapy

19 Mar

Two weeks ago, Susie started Hyperbaric Oxygen Therapy (HBOT) at St. David’s Wound Care and Hyperbaric Medicine Center.  Her treatments last two hours, are daily Monday through Friday and are scheduled for eight weeks.  The chamber’s pressure is increased to two atmospheres … Read More »

Hyperbaric Oxygen Therapy

18 Feb

It has been over a month since Susie started taking antispasmodics.  We were hoping to see neurologic improvement, but her condition is largely unchanged.  We met with her local Neuro-Oncologist this week for follow-up and to discuss next steps. First and … Read More »

Is change in the wind?

18 Jan

Under President Obama a lot has transpired over the last eight years.  Many Americans are at arms that Donald Trump will become President at the end of this week.  I have heard of organized protests around inauguration and even some states preparing … Read More »

A SMART Syndrome New Year

5 Jan

The end of 2016 has been a bit of a roller-coaster.  We started the last quarter on a bit of a high.  Susie was doing better.  She seemed to have more energy with the addition of Hydrocortisone (swimming twice a … Read More »