Mother’s Day Follow-up

20 May

The month of May has been quite busy for us.  We’ve had lots of visitors in town. First our nephew (with his sweet daughter) stayed with us for a few nights. They joined us at the YMCA for one of our swimming … Read More »

Reading Children’s Books in the New Year

11 Feb

As I look back on last year, I think about the obstacles Susie overcame and the ones we are still trying to get over/ around.  The neurological obstacles associated with brain cancer and stroke have been very real.  Core capabilities all of us tend … Read More »

Grandpa Fred McCarthy

3 Jan

Just before New Years, my father-in-law (Fred McCarthy) passed away.  He was just shy of 95 years old.  Fred and Susie’s mom (Leora) married almost twenty years ago.  Our children have known him as their grandfather.  Fred and Leora have … Read More »

Thankful Holiday

9 Dec

In November, Susie had a cancer appointment at MD Anderson.  The short synopsis is her tumor region is stable (no disease progression) and her pons brain stem stroke is resolving.  She now moves to a 4 month interval for cancer follow-ups. … Read More »

Time for a Summer Vacation

17 Aug

Susie and I returned from her Neuro-Oncologist appointment today.  It has been quite a whirlwind last four months.  After three months of Hyperbaric Oxygen Treatment, Susie had a brainstem stroke in April.  She met with many doctors and has completed around three … Read More »

Disability Hearing

25 Jul

Susie and I had an Administrative Law Judge Hearing on the 19th of July.  She applied back in 2008 for Social Security Disability.  After chasing her claim for three years, we learned in 2011 that her claim was denied.  The … Read More »

A Happy Mother’s Day

14 May

We’ve made it to the middle of May, which is no small feat considering Susie had a brain stem stroke two weeks ago.  This last week was a few steps forward.  Susie’s brother Doug was in town to help.  We … Read More »

The Season of Rebirth

2 Apr

Susie has completed four of eight weeks of Hyperbaric Oxygen Therapy (HBOT).  Middle of last week was quite hard for her.  She did not want to continue.  The treatment is not painful, but she feels very different after it.  The … Read More »

Two weeks into HBO Therapy

19 Mar

Two weeks ago, Susie started Hyperbaric Oxygen Therapy (HBOT) at St. David’s Wound Care and Hyperbaric Medicine Center.  Her treatments last two hours, are daily Monday through Friday and are scheduled for eight weeks.  The chamber’s pressure is increased to two atmospheres … Read More »

Hyperbaric Oxygen Therapy

18 Feb

It has been over a month since Susie started taking antispasmodics.  We were hoping to see neurologic improvement, but her condition is largely unchanged.  We met with her local Neuro-Oncologist this week for follow-up and to discuss next steps. First and … Read More »

A SMART Syndrome New Year

5 Jan

The end of 2016 has been a bit of a roller-coaster.  We started the last quarter on a bit of a high.  Susie was doing better.  She seemed to have more energy with the addition of Hydrocortisone (swimming twice a … Read More »