Disability Hearing

25 Jul

Susie and I had an Administrative Law Judge Hearing on the 19th of July.  She applied back in 2008 for Social Security Disability.  After chasing her claim for three years, we learned in 2011 that her claim was denied.  The … Read More »

June Graduation

6 Jun

It certainly feels like summer in Austin.  We’ve had a handful of days in the high 90s with spotty rain that has cooled days down into the 80s.  I think nights with 60 degree temperatures are gone for a few … Read More »

A Happy Mother’s Day

14 May

We’ve made it to the middle of May, which is no small feat considering Susie had a brain stem stroke two weeks ago.  This last week was a few steps forward.  Susie’s brother Doug was in town to help.  We … Read More »

My Experience w/ a Twitter Troll

19 Apr

Recently, I experienced a twitter shaming attack from an account whose description is “PROUD MUSLIM. LIVERPOOL! BOXING! @LFC #FreePalestine #FreeSyria #Humanity”.  His tweet was “@IBM this guy that represents you likes people starving to death, and thinks PALESTINE are terrorists“. … Read More »

The Season of Rebirth

2 Apr

Susie has completed four of eight weeks of Hyperbaric Oxygen Therapy (HBOT).  Middle of last week was quite hard for her.  She did not want to continue.  The treatment is not painful, but she feels very different after it.  The … Read More »

Two weeks into HBO Therapy

19 Mar

Two weeks ago, Susie started Hyperbaric Oxygen Therapy (HBOT) at St. David’s Wound Care and Hyperbaric Medicine Center.  Her treatments last two hours, are daily Monday through Friday and are scheduled for eight weeks.  The chamber’s pressure is increased to two atmospheres … Read More »

Hyperbaric Oxygen Therapy

18 Feb

It has been over a month since Susie started taking antispasmodics.  We were hoping to see neurologic improvement, but her condition is largely unchanged.  We met with her local Neuro-Oncologist this week for follow-up and to discuss next steps. First and … Read More »

Is change in the wind?

18 Jan

Under President Obama a lot has transpired over the last eight years.  Many Americans are at arms that Donald Trump will become President at the end of this week.  I have heard of organized protests around inauguration and even some states preparing … Read More »

A SMART Syndrome New Year

5 Jan

The end of 2016 has been a bit of a roller-coaster.  We started the last quarter on a bit of a high.  Susie was doing better.  She seemed to have more energy with the addition of Hydrocortisone (swimming twice a … Read More »

2016 VP Debate in Virginia

5 Oct

Last night, I watched Governor Mike Pence and Senator Tim Kaine participate in the 2016 Vice Presidential Debate.  This debate was held in Virginia, where Mr. Kaine is a US Senator.  Overall, I think both did a good job.  I … Read More »

Quality of Life Improvement with Hydrocortisone

2 Oct

Just finished Susie’s cancer follow-up this week.  Her neuro-oncologist was greatly pleased with how she has physically improved over the summer.  She had been fighting fatigue and persistent ear infections over the last couple of years.  Her condition had deteriorated … Read More »